Log in

Breast Cancer Awareness [entries|friends|calendar]

[ userinfo | livejournal userinfo ]
[ calendar | livejournal calendar ]

[21 Jun 2014|04:19pm]

Seven years ago this week I was diagnosed with breast cancer. As of my recent MRI there is no evidence of disease. Thank you to everyone who supported me through that trying time. I could not have gotten through without the support of this group.
1 story| tell us your story

[20 Jun 2013|09:42am]

Cancer is my family is common.  My grandmother had breast cancer in both breasts (which were both removed), my uncle just died from cancer in his spine, my aunt is terminal with cancer of the blood...so I am well aware of the struggles and the loss that comes with this disease.  I am vigilant with my health but I am also vigilant when it comes to helping others.  I ask you all for a favor...

Please visit the link below.  No one expects you to donate $ unless you choose to, but if you could just get the word out...pin it, FB like it, tweet it...I would be so grateful.  Cancer is a community disease as it takes a toll on all of us, whether we're the ones diagnosed or not.  So please, take just a moment of your time to spread the word to help Carol.  Thanks.

tell us your story

Loss of a Friend [15 Mar 2013|03:35pm]

The beloved and courageous Kyril Oakwind, whom I first meet through this group, passed away March 9, 2013 after a long fight with metastatic breast cancer. Rest in peace.
6 storys| tell us your story

Letters to my mum [19 Nov 2012|08:53pm]

Hey there!

My mum was diagnosed with breast cancer in 2007. She got a lot better but now the cancer is back. And this time it's incurable. 
Here in this LJ I try to deal with it. Maybe some of you want to read it and share their thoughts.

Letters to my Mum
4 storys| tell us your story

Question I've been scared to ask [11 Nov 2011|08:41pm]

I'm a four year breast cancer survivor, and underwent an oopherectomy this summer, putting me into instant surgical menopause. Recently, I've developed non-localized pain in my left breast, where I originally had breast cancer. I can't feel any lumps or changes, and neither could my gynecologist when I went in for my annual exam two weeks ago. She said that it was behaving like a muscle problem, but when I asked if I could wait until my December check-up with my oncologist she said, "It's not worth the risk."

My question - has anyone ever had generalized breast pain that was a symptom of breast cancer? Right now I'm feeling both scared and paralyzed.
9 storys| tell us your story

Tonight, September 24: Breast Cancer Research Fundraiser in Los Angeles [24 Sep 2011|11:11am]

Bowling for Boobies is a wonderful charitable organization dedicated to breast cancer research and relief: http://www.bowlingforboobies.com/

Tonight - September 24, 20% of the door proceeds from a beautiful event, Lilith Eve at RUIN Hollywood, will be donated to Bowling For Boobies. Lilith Eve, presented by LADEAD™ (Los Angeles Darkside) will take place within the darkly elegant Monte Cristo in Los Angeles: 10:00 p.m. - 2:30 a.m.

Exquisite darkwave, trip hop, dark indie, tribal, synthpop, dark 80s and 90s, dreampop, avant garde, and downtempo music will be played by DJ Xian and DJ Baron. To make this night even more special, Djahari Clark, founder of Desert Sin (http://DesertSin.com/), principle dancer for the Pars National Ballet Company, producer and co-creator of "Musée des Femmes – Tales of the Grotesque and Arabesque" (L.A.), and creator of "Twitchers" @ House Of Yes (N.Y.), will perform "Original Sin" at the witching hour - to celebrate the Autumnal Exquinox and women...

See you there - in sultry attire of blood red...

Lilith Eve/RUIN Hollywood at the Monte Cristo
3100 Wilshire Blvd. (at Westmoreland)
Los Angeles, CA 90010
(just east of the Metro Redline Station at Wilshire Blvd. and Vermont Ave.)

Image and video hosting by TinyPic

$5 entry with RSVP before 10:30 p.m.
Must RSVP "Attending" by 7:00 p.m. on Saturday, 09/24
RSVP Facebook: http://tinyurl.com/3qyml5d

For more information:
LADEAD™ (Los Angeles Darkside)
tell us your story

Halaven is not needed anymore [22 Mar 2011|10:49pm]

Two days ago PM Olga's kidneys shut down and she slipped into semi-comatose condition. A year ago she gave me strict instructions for situations like that. We stopped all treatment and she was transferred to a palliative unit of the same hospital. As the nurse said, it might take between a week and two.

There's no more pain, no more hospitals, no more worries. When my time comes, she'll be waiting for me on the other side of the rainbow.
3 storys| tell us your story

Justing rambling, wishing I had someone to talk to... [04 Mar 2011|10:57pm]

[ mood | contemplative ]

I didn't know where else to talk about this, none of my friends seem to be going through anything similar.

I am getting my BRAC testing done, I don't know how to go about it, but I am going to make it happen somehow. My mother had breast cancer twice, the first time before she was 30 yrs old, and the second time before she was 50.  Both my grandmothers had it, 3 out of 6 of my aunts (outta both sides) have had it, and the only reason one didn't is she died quite young. The other one has had ovarian cancer. The third doesn't have the gene. Hell, even my step-mother had breast cancer, and her mother before her! I have always assumed I would get breast cancer. I am still fairly sure of it, but I really want the test, just to give me a sense of peace, but I'm not sure it will. What is it comes back positive? The worst of it is, I am soon going to lose my health insurance. If it comes back positive, what am I to do? Without insurance I'll have no options. Also, I really want to breast feed my future children. I've googled whether or not you can breast feed without mammary tissue, but have never gotten a real response. Does anyone know? I keep thinking if I am diagnosed with BRAC I do want to get my boobies removed & reconstructed, but it scares the hell outta me too. When my mother got her second breast removed and reconstructed she went through years of pain, as she didn't heal well. That was an awful time for her, and me. Here she is, just having lost her last breast to cancer again (and she had beautiful, full breasts, it was always the one thing that made her feel like a woman, see, my mother has been 6'2 since middle school, with no hips, which wasn't considered very feminine in the 50's and 60's), it was supposed to get easier after that, but it was a painful painful experience. I am just rambling, but I guess I wanted to hear from other gals that were possibly in the same position as me. I check a lot of the websites, Bright Pink, FORCE, etc, but you can't really communicate with the other women. And my mother just tells me not to be so negative, and otherwise refuses to talk about breast cancer, so won't even buy anything with the pink ribbon on it. So here I am, rambling to strangers, hoping to not feel so alone in my fears. Thanks for listening ya'll.

19 storys| tell us your story

Earthquake in the BC World [13 Feb 2011|09:42pm]

Lymph Node Study Shakes Pillar of Breast Cancer Care
10 storys| tell us your story

[30 Jan 2011|10:56am]

I'm posting this in all the places I can - please consider joining Dr Susan Love and the army of women


Special Message from Fran Visco
On September 20, 2010, we called for a global strategy to end breast cancer by January 1, 2020. We launched Breast Cancer Deadline 2020®. When we announced this bold move, Susan Love said, “We can be the generation that stops breast cancer—and we must be the generation that stops breast cancer.” It’s time. With the power, commitment, passion, intelligence and courage of our advocates at NBCC, we will make this happen.

By calling for an end to breast cancer, we’re calling for an end of business as usual. Breast Cancer Deadline 2020® changes the conversation from raising awareness about the disease to one that asks, “What must we do differently to end breast cancer by January 1, 2020? How do we succeed?” It upends "business as usual" and brings back the sense of urgency needed to save lives.
tell us your story

[21 Jan 2011|01:23pm]

 I entered a scholarship contest to promote the importance of childhood cancer awareness. A dear friend of mine passed away of childhood cancer last month. The money I win for this scholarship will go to a childhood cancer foundation. The last scholarship contest I asked you guys to vote for I won and a $200 went to the American Humane Society. Please vote for this entry. It would mean a lot to me. Just click the link. You can vote every 12 hours for 2 months.


Please let me know of any other cancer awareness communities I can post this in. 
tell us your story

Privateer Feast #10: "Ten years of the Best Support A Boobie Ever Had!" [11 Jan 2011|10:53am]

​Team Wench will hold its Tenth Annual Privateer Feast “To Save the Treasured Chest” benefiting breast cancer awareness and research on Saturday, March 5th, 2011 from 6:00 p.m. until 10:30 p.m. Join us in our endeavor to reach new heights with “Ten Years of the Best Support a Boobie Ever Had!”

​Team Wench will be returning to last year's venue, the Earleigh Heights Volunteer Fire Company (VFC) in Severna Park, Maryland. Its huge galley and well-stocked hold will be serving up plenty of mouth-watering dishes to satisfy your hunger. Hungry, or should I say THIRSTY, for more than a fine meal? The grog will flow freely again this year and yer still welcome to bring yer own wondrous libations. If you prefer to wet yer whistle with libations of a softer nature, not to worry, we'll have plenty of options on-hand. How will you bide your time on this voyage? We've shanghaied the best in piratical entertainment and plundered quite a bit of rare & valuable swag just for you to bid on. So pack yer sea chest or grab your ditty bag and prepare to set sail!

​Feast tickets will go on sale through TicketLeap beginning Friday, January 14 at Noon for the Early Bird Price $50 (plus TicketLeap Fees). Be sure to buy your tickets before Monday, February 14 at 11:59 p.m EST to get the Early Bird price.

​If you wait til February 15 you can still buy Feast tickets, but at the Regular Price of $60 (plus TicketLeap Fees). Tickets will be available at this price until Wednesday, March 2 at 6:00 p.m. EST.

Please visit http://pf.TeamWench.org/ for complete details.

​Redistribution of this letter is not only permitted but encouraged - Thank you!
tell us your story

Regarding "Pink October" [01 Oct 2010|10:21am]

I have a problem with all these glamourly-pink awareness events. They never tell you the truth... As a husband whose wife (a mother of two young kids) is battling a Stage IV BC this is disturbing me deeply. So I'm taking part in this "Virtual Stage IV Awareness" event. We'd like people to know that BC is not a thing of the past and we still need a cure. Badly. VERY badly.

If you'd like to help, please distribute the following text to your local media. Thank you!

Dear Editor,

Millions of people around the world are participating in various breast cancer awareness activities this month. Many of these events involve walking, running or biking for "The Cure." This year, I am participating in a new campaign dedicated exclusively to raising awareness about metastatic breast cancer. It's called the "The Virtual Rally in Support of Progression-Free Survival."

We are asking the 150,000 women living with metastatic breast cancer to write a letter to their local news outlets.

There is no cure for metastatic breast cancer aka advanced breast cancer or Stage IV. We rarely hear about the 150,000 U.S. women dealing with it. In October, it seems the spotlight is almost exclusively on women who "beat" cancer-not the "metser" who is losing her hair for the third time, or the one struggling with chronic constipation or the one who knows she won't see her daughter graduate from grade school.

We don't want your money or your pity and we're not selling pink t-shirts. We just want you to know that we are here and that for us, treatment never ends. Other women HAD breast cancer. We HAVE it and we always will. We hope someday there WILL be a cure so that our daughters are spared our fate.

We want people to know that:
>Metastasis refers to the spread of cancer to different parts of the body, typically the bones, liver and lungs.
>Treatment is lifelong and focuses on control and quality of life vs. curative intent.
>About 6% to 10% of women are Stage IV from their initial diagnosis.
>Early detection is not a cure. Metastatic breast cancer can occur ANY time after a woman's original diagnosis, EVEN if she was initially Stage I, II or III.
>Only women with Stage 0 (noninvasive breast cancer) aren't considered to be at risk for metastatic breast cancer.
>Between 20% to 30% of women initially diagnosed with regional stage disease WILL develop metastatic breast cancer.
>Young women DO get metastatic breast cancer.
> There are many different kinds of metastatic breast cancer.
>Treatment choices for MBC are guided by hormone (ER/PR) and HER2 receptor status, location and extent of metastasis (visceral vs. nonvisceral), previous treatment and other factors.
>Any breast lump, thickness or skin abnormality should be checked out. With inflammatory breast cancer, there's no lump-the breast can be red and/or itchy and the skin may have an orange-peel like appearance.
>Don't use the recent mammogram controversy to postpone your first mammogram or delay your regularly scheduled exam, especially if you have a family history.
>Mammograms can't detect all cancers. Trust your instinct. If something feels "off" insist on further diagnostic testing.
>Metastatic breast cancer isn't an automatic death sentence-although most women will ultimately die of their disease, some can live long and productive lives.
>There are no hard and fast prognostic statistics for metastatic breast cancer. Every woman's situation is unique.

One last thing. Knowing what to say to someone with metastatic breast cancer can be difficult.
It's fine to say: "I'm so sorry that you have to face this disease. I will be thinking/praying for you. Please let me know if I can help."
Try to avoid back-handed compliments such as: "You are so strong, if this had to happen, you were the right person to get it because you are brave and strong," or "If I had breast cancer, I would be falling apart or scared to death. You seem just fine with it."
Those statements are akin to "You don't sweat much for a fat person," and we hate them.

There are many excellent online metastatic breast cancer resources. Examples include www.breastcancer.org; www.mbcnetwork.org; and www.metavivor.org.

Sincerely yours,...

4 storys| tell us your story

lymphedema [05 Sep 2010|01:14am]

[ mood | grateful ]

I'm so happy to be home. Tuesday night when I was getting ready for bed I realized how much pain I was in. That's not too unusual because I have firomyalgia. But, this was different. My left arm, the one I have lymphedema in since my mastectomy in 1997 was painful and hot. But, when I put on my compression garments I didn't notice any redness so I thought perhaps it's the impending hurricane. I didn't get to sleep all night because of the pain, the throbbing and the heat in my arm. Of course, I began to susspect what really was the matter. When wackdaddy got up in the morning, I still hadn't been to sleep. I tossed and turned ten times worse than normal. I told him what was wrong and that I would probably take myself to the ER after I got some sleep. No way could I sleep, so I took a quick shower, got dressed and drove myself there. I called my daughter so she wouldn't look for me, and I called my husband and "cried" that I wanted him to meet me there.I've had lymphedema for thirteen years yet this is the first time I ever got an infection.

I got taken into triage right away. There was noone else there. They gave me something for the pain, took a look at my arm, which was bright red and of course we knew that it was cellulitis. I had no idea how that developed. No bites, no scrapes, no manicures.......why did it happen without an obvious reason. They admitted me so that I could get intravenous antibotics and pain meds...........the usual treatment. Have any of you had experience in this area? And, what did you do?

5 storys| tell us your story

Art: This Means War [02 Sep 2010|09:06am]

This is the picture I started last year when I was diagnosed with breast cancer. It's finally complete. I call it my Fight Picture :D

Linked to my personal journal:
This Means War
3 storys| tell us your story

Phantom itching..... [12 Jun 2010|11:15pm]

Have any of you "suffered" from constant itching where once there was a breast. For the past 39 hours, I've been itching inside my boob that's no longer there as well as on my belly where they did the tram flap surgery. All those nerve endings are having a freeforall and it's' driving me nuts. I'm about to take two benadryl and go to bed, hopfully to get some sleep, the sleep I didn't get last night. I've scratched myself raw...and that hurts too.
10 storys| tell us your story

Cautiously optimistic [01 Jun 2010|11:17pm]

Here's hoping it works on humans

2 storys| tell us your story

Last Chemo this week [17 May 2010|09:33pm]

Wednesday this week will be Mom's 6th and final chemo.  They are reducing it again by 20% so they feel very strongly a mastectomy should follow shortly thereafter.  Can anyone provide any advice on the mastectomy? Things I should ask the surgeon?  Do you all know if this is normally an out patient thing or do they keep them for a few days?  I may be thinking prematurely.  Just want to be sure I'm ready to help her the best way I can.  

I love her so much <3

4 storys| tell us your story

Living Downstream Premiere in Toronto On Tuesday! [17 May 2010|04:01pm]
LIVING DOWNSTREAM | a feature documentary about cancer and the environment | www.livingdownstream.com
Tomorrow is the Canadian Premiere of
Living Downstream
 Co-Presented by
Tuesday May 18, 2010
7:30 pm
506 Bloor Street West Toronto, Ontario 
If you have purchased your advance tickets, this is a reminder that the screening will take place tomorrow.
If you have not purchased tickets, you can still buy them through: 
Brown Paper Tickets: Advance tickets are available online at Brown Paper Tickets until the end of the day on Monday May 17. If you have not received physical tickets for your online purchase before the screening, they can be picked up at the will call table located inside the front doors of the Bloor Cinema starting one hour before the premiere.
Book City: Advance tickets are available for purchase in-person at all Book City locations until noon on Tuesday May 18.
Bloor Cinema Box Office: Remaining tickets will be sold at the Bloor Cinema box office starting at 6:30 pm on Tuesday May 18.
Q&A session with Sandra Steingraber and Chanda Chevannes to follow the screening. A book signing of the newly released second edition of Living Downstream will be hosted by Book City.*
Please forward this email to anyone you know who may be interested in attending this special event.
Ecologist, author, and cancer survivor, Sandra Steingraber, Ph.D. is an internationally recognized authority on the environmental links to cancer and reproductive health. Based on Sandra's acclaimed book, Living Downstream is an eloquent and cinematic feature-length documentary.  This poetic film follows Sandra during one pivotal year as she travels across North America, working to break the silence about cancer and its environmental links. 
This screening coincides with the release of the second edition of the book by Da Capo Press, which has been significantly rewritten with all the latest scientific evidence.

Please visit www.livingdownstream.com for more information on Living Downstream and the screening.
Directed by: Chanda Chevannes  Produced by: Chanda Chevannes and Nathan Shields  Edited by: Nathan Shields
Director of Photography: Benjamin Gervais  Sound Designer: J.R. Fountain  Sound Editor: Trent Richmond
Original Music Composed and Performed by: Randall Wallace  Based on the book by: Sandra Steingraber, Ph.D.
Living Downstream is produced by The People’s Picture Company with generous support from The Ceres Trust, Kendeda Sustainability Fund of the Tides Foundation, The Canadian Independent Film and Video Fund, Canada Council for the Arts, Park Foundation, Canadian Auto Workers Union – Social Justice Fund, The Cancer Prevention Challenge (Ya Ya Sistahs & Bruddahs Too! and Team Vitality), Doris Cadoux and Hal Schwartz, and Saunders-Matthey Cancer Prevention Coalition. Produced in Association with Women's Healthy Environments Network.
*The book signing will take place at the Bloor Cinema after the screening. Only cash, Visa, or Master Card will be accepted for book purchases.
1 story| tell us your story

[07 May 2010|02:59am]

I am most scared and need some words of encouragement.

Finished chemo in September, and started Tamoxifen at that time. AC pushed me into menopause.

About 1 month ago, I had some spotting, and I told my oncologist, who is having me checked for the dreaded uterine cancer. The test is scheduled for next week.

Much to my relief, exactly 28 days later on the dot, I had what seemed to be a normal period. No guarantees, but it made me feel a lot better. Except now I've been bleeding for 7 days. Never bled that long before!

Did anyone have symptoms like this? Or at least think I have some hope of not having a tumor?

Trying not to worry about it . . . even if I have more cancer, it's been caught early, and it's just more chemo, right?

8 storys| tell us your story

[ viewing | most recent entries ]
[ go | earlier ]